I had a followup appointment with my surgeon last Friday to check the progress of the wounds and their healing. The irrigation wound has closed to the point it approximately 2 inches deep. It's width has also decreased, as we can only fit 1/4" packing into the wound. This has unfortunately increased the drainage, as the packing doesn't have the same absorbing power (I'm going to guess 25%.) The anus is having issues closing, so the surgeon was kind enough to put some sodium nitrate on the one side to remove some of the excess skin: Take note, this was quite possibly some of the worst pain I've ever experienced. It was like sitting in a bowl of acid for two days (kinda reminded me of the bile days with the ole J-pouch!)
They were happy with the progression, but noted that the healing of these two wounds doesn't always go as planned due to A) the depth and B) the area it's located. As a result, there's a possibility that I'll need to have surgery to close these wounds. Technically, I think they "could" do in the office, but I'm pretty sure they want me knocked out due to the pain it causes. (Yes, it's tender down there.) We'll know more when I have my next followup on the 20th.
I have only a few more days left of the steroids (down to 2.5mg/day) and then we'll be drug free. Coming off the steroids has been sort of crappy, as my entire body hurts and I'm exhausted all the time. I'm hoping this goes away over the next few weeks as my body remembers how to make it's own. I've been off the pain meds for almost 2 weeks, except for after the sodium nitrate burns from last week. The pain is manageable, when necessary, by Advil or Motrin.
We visited with my ostomy nurse (Ostomom) on the same day to have her checkout the stoma. She was happy with how it looked and noted it wasn't as bad as I thought. Regardless, she noted that the surgeons wouldn't do a revision for at least another 4 months until this one healed and I was back to strength. I guess we'll see how this stoma works out.
I've been in contact with both Hollister and Convatec (two ostomy suppliers) to get samples and see which works well. Convatec has created new "slim" versions of their Eakins seals, which seem to work quite well for the flatness of my stoma. I do like the versions of their Durahesive wafers which are modable, making the application a little easier. Both ostomy nurses from those companies were fantastic in offering suggestions for their supplies and sending out samples over night! I personally like the Hollister bags better, but the wafers are more important. I may give another call to see if I can get smaller wafers to see how they hold.
Sitting has become a welcome treat, but I can only do for about an hour, typically while eating, before it becomes too much. I can lie on my back for much longer periods of time, which makes for easier sleep and rest. The World Cup and Tour de France couldn't have come at a better time: There's not much to watch after midnight, but these re-runs sure keep me entertained until I pass out. Until next week, enjoy the Cup run!
6 years ago